Hypermobility Redux

February 14, 2022

Mary Carpenter

iStock By Mary Carpenter Mary is updating her 2016 post on hypermobility because she found out about a recently opened (2019) D.C.-area clinic, which specializes in connective tissue disorders that underlie hypermobility – it currently has an 18-month waiting list…

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Are You Bendy Like Gumby?

December 5, 2016

Mary Carpenter

…symptoms related to hypermobility can lead to a diagnosis of Joint Hypermobility Syndrome (JHS), writes Alan Pocinki, hypermobility expert at George Washington Hospital, in a packet requested by his patients “to help educate others about their condition.” JHS affects three…

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Rolfing -- Without the Ouch

June 19, 2017

Mary Carpenter

…orthopedic surgeries—traced mostly to hypermobility in my joints—I began going several times a year to local bodyworker Rebecca Carli, based on friends’ recommendations. Each time, Carli got my body feeling better balanced and ended every session with blissful cranial-sacral (head…

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Collagen Redux

February 24, 2020

Mary Carpenter

…hypotheses and research on the connection between my issues—joint hypermobility, inflammation and chronic pain, sometimes called “joint hypermobility syndrome”—and inherited disorders of collagen synthesis, like Ehlers-Danlos syndrome. To combat the ravages of aging skin, ingesting collagen seems to offer the…

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Labels Matter in Diagnoses

October 14, 2024

Mary Carpenter

…STAT post—noting frequent failures to diagnose the hypermobility that is related to EDS but remains in “medicine’s grey area.” Very loose joints may fail to receive the hypermobile EDS (hEDS) label because, unlike the 13 other EDS subtypes that are…

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Fidgeting Gets New Respect

February 7, 2022

Mary Carpenter

…I have learned that any movement, including fidgeting, at least once during each half-hour period can help counter the hypermobility, beginning with loose joints, that creates myriad problems. I am also working on general self-acceptance. But a new fidget with…

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Autoimmunity: A 2024 Update

May 6, 2024

Mary Carpenter

…has Hashimoto’s and the other Sjogren’s syndrome. And genetic links are still emerging: for another friend who has Ehlers Danlos hypermobility, researchers suspect connections to genetic variants that have been found in rare forms of this disease. The most important…

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